Tag Archives: immunotherapy

WE DID IT! Now what?!

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As the banner says, I did it!  I managed to finish in just under an hour – awaiting the official result but by my watch it was 58.40 (7.11 mins per km – a PB!).  Very happy with that given I did next to no training for the last two weeks leading up to today.

What an amazing experience it was too. It was incredibly empowering to be a part of something so strong and so vibrant and humbling to read all the tribute cards.  It’s easy to forget as we go about our busy lives that cancer could affect any of us at any time.  It is our obligation to support those affected where we can and, when given the chance, to pull together to find a way to beat this terrible disease. 

Huge respect and congratulations to everyone who took part today and of course massive thanks from me to everyone who supported me, financially, emotionally, physically.  Most of all my four amazing boys.

Some photos from my day.

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With the boys at the starting line.

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My smile belies my dreadful nerves.

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  Very happy to see Hannah

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Almost there (running so fast Andrew could hardly get me in shot!)

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Across the line!

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Clashing with my t-shirt!

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  Celebrating with the Kelly family.

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  Doing it for Darcy.

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The journey home.  We never tire of travelling to and from the city on the ferry, it still feels like an adventure.

Image  First stop The Source – loving BJ’s creative coffee labelling!

 Image First drink in a month, cheers!

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A lovely lunch at Bathers, our ‘go to’ place for occasions with the boys.  Such a treat!  (And yes, I’m still wearing the medal – the boys and I have taken it in turns all day!)

Darcy is doing really well at home with his family before immunotherapy treatment 4 out of five begins later this week.  It looks like they have had a great Mother’s Day too, and so so deserved.  http://www.facebook.com/DoingItForDarcyNz?fref=ts

I am still blown away by your generosity, thank you.  In case you were waiting for me to actually do it….https://www.youcaring.com/other/doing-it-for-darcy/54263

Julia xx

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The Dorm and the Desk

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Image  The Country Living connection ends here!

Image  Our shared space!  Never to be as tidy again.

Finally, years after buying the thing my massive desk is coming into proper use.  Not unusually for me it was bought on a whim without a tape measure or any means of getting it home from the ‘antiques centre’ where I bought it.  I think I doubled its price to about $100 by finding some poor mug who had unwittingly put an ad in the local paper offering himself and his van for pretty much any use.  He nearly turned and ran when he saw me in the rain with one small cross child and a massive bump (Sam).  I don’t quite know what I thought I needed a desk for at that time but anyway.  Since then it has been one of our two most annoying pieces of furniture (beaten by Andrew’s futon, see ‘Thanks Mum! April 23rd) used as a den, a jumping off platform for the bed it was beside, a sticker book storage depot, everything apart from my writing…until now.

I have my first commission for an article.  Someone (a well known newspaper) is paying me to do what I love doing the most (and do for free for all you lovely people).  This also means I have a proper grown up deadline to add to the balls in the air.  So far it’s working, the balls are still there while I try to smile serenely (more like a rictus grin) and keep paddling madly beneath the surface.

Andrew suggested I could call today my first day at work since mid 2002.  After I had finished bashing him about the head with the nearest heavy object – the last seven years have hardly seen me lazing about reading mags with my feet up (and my grey hairs, wrinkles and back problems are testament to this) – I understood what he meant (I’ll admit uni was not the most taxing four years).  Today will be the first time since leaving a corporate job to return to uni where someone has officially paid me for my time.  Scary thought.  I have to admit I’m a little nervous about being child-free for a day; they are as much my safety as I am theirs.  I know, I know it will be great but it will also be weird.

So we have a dorm and a desk.  All three beds fit in together really well which is a massive disappointment to William who was hoping desperately for a bunk bed.  Those of you who know Edward will understand our determination to squeeze three beds in!  Sometimes I do wonder why we bother with beds for Sam and Edward at all.  This morning I woke up with a crick in my neck, a knee in my back and a dead arm.  I would have been comfier on the bloody futon!

I had to check back to when I mentioned the futon and found reading the post of 23rd April a bit depressing as since then I have barely managed a decent run.  As people say, you can’t predict injuries but really, sports people get injured, not desperate housewives out for a light jog surely? Yesterday I took some stronger painkillers and went for a run anyway (aha, you see, you thought I’d gone all sensible without the wine, that’s much more Julia-like isn’t it?) as I am beginning to panic about next weekend.  I managed about 4ks and wore my 3 f’s t-shirt (fit, fast and fabulous) for motivational purposes (it distracted me at least as I thought of alternatives – flabby, frantic and foolish?).  I’m now beginning to see the run like childbirth –something to be endured in order to get a great result.  It is lucky it’s all for such a good cause, otherwise the towel may have been thrown in a while ago.

Darcy is back at school today after having a quiet week recovering from his last immunotherapy treatment.  It is humbling to imagine what he is enduring and here I am complaining of sore ankles.

Six days to go, roll on Sunday I say!  Thanks everyone for your support.

http://www.facebook.com/DoingItForDarcyNz?ref=stream&hc_location=stream

https://www.youcaring.com/other/doing-it-for-darcy/54263

The happy other (and mother)

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Image    The best coffee in Mosman (and further) found at The Source.                                         Love being a regular!

Arghhhh!  If I have ever craved a glass of wine since the 12th April (and I have, believe me I have) I have never craved one like I do tonight.  Thankfully Andrew has taken the boys to rugby training at which there is a bar and bbq so I don’t have to stand watching the other parents enhance the rugby experience with a drink (oh the times I have done that – Kelso Rugby Club, Murrayfield Car Park, Melrose 7’s, endless pubs in Edinburgh, feel free to add to this list).

The bottle of Prosecco that is in our fridge will be given away tomorrow since it has begun to speak to me, “mmm, , drink me, just imagine the lovely icy fizziness, you know you want to, no-one will know…”  (not terribly imaginative this bottle, and it makes up words) apart from I will and that’s enough.  I am many things including weak when it comes to self-control generally but I feel so accountable doing this, both to all the wonderful people who have supported and sponsored me and of course to Darcy.  Thankfully I definitely got the gift of tenacity from both my parents so when I do something…  Roll on the 12th May however!

I’ve been thinking about community today, and how far I’ve come in terms of feeling settled in just a few months.    A lot of you will know that I have a tendency to over-think things and there is no doubt I have done it with the whole expat situation.  I’ve even been known to bring my post-colonial and anthropological learning into the discussion, applying the idea of ‘the other’ to myself and the boys.  It has really concerned me that they and I will not share a cultural identity should we choose to remain away from the UK.

I am not yet entirely at peace with this however I have decided to put this to one side for now and simply enjoy living in Mosman.  We are truly blessed to live in a place which affords us easy access to every amenity and facility we require or desire (just a pity it’s not more affordable).  The boys are settled into the most wonderful schools, both of which have such strong community values and which we really feel a part of and now have some lovely friends through.  To supplement this I joined the social committee and coerced Andrew into being on the management committee of the Northern Nursery School.  Turns out I chose the wrong committee, we meet in the mornings with children in tow as opposed to the evenings with wine in hand…hmm, I sense a theme to this post.

We met a lovely lady on the ferry last weekend who has lived in Mosman for thirty years and who told me she met most of her close friends when their children were around this age.  I suggested that we all live for the Friday evening wine with children’s supper and she replied ‘And what about the Monday to Thursday wines?’  A kindred spirit and great example that we are not all dreadful old soaks as we feared.

My sense of belonging was shaken a little this morning when I found that a nasty note had been shoved under our front door.  In it, some nutter from the flats which overlook our back garden accused the boys of waking her up (we’re assuming female from the handwriting) every morning at 6am (when it is still dark and the boys are still in bed) and then a line later expresses her pity for said annoying boys since they have a mother who shouts.  Show me the mother of three very lively boys under 6 who never has cause to shout and I’ll promise not to drink for a bloody year.  What a cheek!  Talk about not having enough in your own life to worry about.   Andrew made me report the old bag to the police who said I should have phoned and they would have come round in order that the perp (ha ha!) might have seen them and therefore would know we’d reported her.  What a cowardly thing to do and the last thing I need.

Phew.  Now I need a drink more than ever.

Image      Autumnal Joy!

Running wise my lovely friend Chris, a chiropractor whose son Hugo is Sam’s bestie, re-aligned my ankles (I think that’s what she said) and I now have orthotic insoles in my trainers…fingers, or rather toes, crossed I’ll be able to run a bit more in the last week I have to train.

Darcy is at home recovering from the immunotherapy treatment that was really brutal last week.  Wee soul, it is just so much for anyone to go through, let alone a child.  As a Mum I imagine it must be utterly heart-breaking to watch.  I feel it physically in my gut when I think about the Wilson family and what they are all going through, they show such bravery and determination always with a ready smile.  Simply amazing.

Fan-bloody-tastic effort everyone!  We have made it to the $500 mark which was the initial goal.  I’m upping it to $700 by next Sunday, can we do it?  Yes we can!

Link to Doing it for Darcy http://www.facebook.com/DoingItForDarcyNz?fref=ts

Link to fundraising page https://www.youcaring.com/other/doing-it-for-darcy/54263